Meeting date: April 4, 2024
Focus Group: My Health Focus Group Meetings
Agenda Items
- Item 1.
- Screen your way to better health
- Item 2.
- Stomp/Stamp awareness
- Item 3.
- Reasonable adjustment digital flag
- Item 4.
- Reasonable adjustment digital flag
- Item 5.
- Any other business
Who attended
7
Self Advocates
4
Families & Carers
7
Key Organisations
5
Provider Organisations
2
Board Members
Guest Speakers
- Andrea Clark
- Ace Anglia – Item 1
- Jerry Newman
- Norfolk & Suffolk NHS Foundation Trust – Item 1
- Wendy Scott
- Suffolk and North East Essex Integrated Care Board – Item 2
Item 1 – Screen your way to better health
- You said
- Where can you find the screening easy read documents?
- Response
- The screening easy read documents will all be uploaded to the Suffolk and North East Essex integrated care board website, and anybody can download or use them.
- You said
- How do we make sure that the GPs are aware of this useful resource?
- Response
- We need to get these in the GPs newsletter. We also need to promote in other places as it is easy to book yourself in for screening.
- You Said
- One person talked about an experience they had with cervical screening and said at the time she was overweight and at the time it hurt. Now she has lost weight she would like to try again?
- Response
- Jerry suggested that ACE contact the Cervical Screening team.
- Response
- Don’t forget that if you haven’t had your screening your GP will see when you go to your Annual Health Check. You should be invited to the screening without having to do anything yourself.
Item 3 – Reasonable adjustment digital flag Wendy Scott
- You said
- Do you have a time frame of when you expect reasonable adjustment digital flag to start rolling out?
- Response
- It has started to roll out now, we have looked at the GP records and looked at who has got a reasonable adjustment list. We are not sure if the reasonable adjustments are accurate. GPs will need to have training on how to update their computer systems.
- You said
- Does the reasonable adjustment digital flag tool cover the hospices?
- Response
- We would like to think so, but I will check this and tell the focus group the answer. The Hospice will all also check.
Item 4 – Women’s health survey, have your say: Question 1. What positive experiences have you had throughout your life when accessing women's health care?
- Answer
- Understanding nurses for cervical smear.
- Answer
- Gave birth to 3 healthy children with no issues.
- Answer
- Female nurse for a smear test, she was very kind.
- Answer
- Good support for menopause from GP.
- Answer
- I gave birth to a child alone with my husband and the ambulance service was fantastic.
- Answer
- I had a great midwife, gave birth in a birthing unit, personalised care.
- Answer
- Community care after pregnancy was very good.
- Answer
- Great home birth experience.
- Answer
- When I had a traumatic birth the community maternity aftercare in Ipswich was really good.
- Answer
- Maternity services are great.
- Answer
- The doctors are pretty good when it comes to me when my mum contacts them for things.
- Answer
- Breast screening services are excellent.
- Answer
- Quick appointment for breast screening.
- Answer
- I had good support from National Childbirth Trust.
- Answer
- Some brilliant nurses in GP practices who don't rush you and are kind and understanding.
- Answer
- A quick referral to the breast clinic at Ipswich Hospital.
- Answer
- I have self-referred myself to a breast clinic.
Item 4 – Women’s health survey, have your say: Question 2. What ideas do you have for women's health care to be better? What needs to change?
- Answer
- More Learning Disability nurses.
- Answer
- Same midwife throughout birth experience.
- Answer
- I was asked if I would like to see a female nurse or doctor.
- Answer
- Consistency with GPs rather than being passed around.
- Answer
- More services available at GP practice.
- Answer
- Clinics are always so cold and most of the time clothing has to be removed.
- Answer
- Consistency with GPs rather than being passed around.
- Answer
- Hospital and surgery appointments take a long time to happen.
- Answer
- Menopause specialists in every GP practice.
- Answer
- Women’s health clinic at GP Practices.
- Answer
- Better mental health services.
- Answer
- Understand that all women are different and have different experiences.
- Answer
- Support for women who may need childcare to attend appointments.
- Answer
- Less waiting times for mental health.
- Answer
- Some brilliant nurses in GP practices who don't rush you and are kind and understanding.
- Answer
- A quick referral to the breast clinic at Ipswich Hospital.
- Answer
- I have self-referred myself to a breast clinic.
Item 4 – Women’s health survey, have your say: Question 3. What difficulties and barriers have you experienced throughout your life when trying to locate or access women’s health care?
- Answer
- I asked for a female doctor to contact me, and a male doctor contacted me.
- Answer
- I tried to see a women’s health nurse and it took 9 months and I’m still no closer to an answer.
- Answer
- I had to go to a clinic for services that my GP wouldn't provide.
- Answer
- Appointment times.
- Answer
- Told how did I expect to feel I had 4 Children!
- Answer
- I need my consultants to sort out things for me but I haven’t heard anything.
- Answer
- I kept getting different doctors and had to retell my story about menopause.
- Answer
- I kept getting different doctors who gave me different menopause advice. It was Confusing
- Answer
- When talking about Menopause, a doctor said what do you expect me to do.
- Answer
- Lack of expertise with menopause for people with Autism.
- Answer
- I was offered anti-depressants and the pill before offered HRT which is what I needed.
- Answer
- I was prescribed anti-depressants.
- Answer
- Support for women who may need childcare to attend appointments.
- Answer
- Less waiting times for mental health.
- Answer
- Some brilliant nurses in GP practices who don't rush you and are kind and understanding.
- Answer
- A quick referral to the breast clinic at Ipswich Hospital.
- Answer
- I have self-referred myself to a breast clinic.
Action plan
| Action | Date | Organiser | Status |
|---|---|---|---|
| Action 1 – Come up with a plan on how the screening resources and information is promoted so that as many people as possible know about this | 04/04/2023 | Wendy and Jerry | Not started |
| Action 2 – Jerry will make contact with the Cervical Screening team via Ace for a person on the meeting | 04/04/2023 | Ace Anglia and Jerry | In progress |
| Action 3 – Future Guests: Pharmacy Team to attend the meeting to present. | 04/04/2023 | Chewy | In progress |
| Action 4 – Future Guests: Hearing Services | 17/04/2024 | Future Guests: Hearing Services | In progress |
| Action 5 – Contact Specsavers about Accessible info | 17/04/2024 | Ace Anglia | Not started |
Minutes for My Health Meeting on 4th April 2024
pdf, 17 MB