Meeting date: February 1, 2024
Focus Group: My Health Focus Group Meetings
- Item 1.
- Menopause film presentation
- Item 2.
- Buzzy four Shots
- Item 3.
- Hospital Passport Film (Steven Largent and Emer O'Mahony)
- Item 4.
- What did we talk about in 2023
Who attended
4
Self Advocates
1
Families & Carers
2
Key Organisations
5
Provider Organisations
3
Board Members

Guest Speakers
- Item 1 Menopause film presentation
- Izzie Akers
- Item 2 Buzzy Four Shots
- Jerry Newman / Jackie Hammond
- Item 3 Hospital Passports
- Emer O'Mahony




Item 1. Menopause film presentation
- You Said
- Jerry feels that there is a real need for families and carers, so they have an understanding of the Menopause. This would be a fantastic resource for young people who haven’t been through the menopause.
- Response
- –
- You Said
- Andrea explained that there had been a pilot last year all about women’s health. There were 8 workshops and one of them was menopause.
- Response
- –
- You Said
- Jerry said that these are great ideas for all and that it works that as a man you can roll this out to understand parts of men’s health too
- Response
- –
- You Said
- Andrea talked about the data that ACE collected from the Pilot and how important it is to use this help people understand what is going to happen and how to find understanding and coping mechanisms
- Response
- –
Item 2. Buzzy Four Shots
- You Said
- Mark asked Jerry if there is a speed control for the machine as this could be a useful function for people who didn’t like the feeling or sensation.
- Response
- Andrea suggested that as an action from the focus group and the partnership board that Jerry , Mark and Chewy send an email to the manufacturers to ask them if there is this function to reduce the amount vibration for people who do not like the sensation.
- You Said
- People said that this invention was an impressive piece of equipment for people who did not like injections.
- Response
- –


Item 3. Hospital Passports
- You Said
- It was asked if the flag system runs alongside the hospital passport.
- Response
- Emer said all the information for parents that she currently holds will be incorporated into the new Hospital flag system.
- You Said
- Andrea let us know that Dr Naveed Iqbal, who is currently making an app that people can use to take to their annual health checks with all their own info wants to us the hospital passport film in the app.
- Response
- Izzie has sent the film to Dr Naveed.
- You Said
- Alison said that the video has been shared across Suffolk and northeast Essex and has been shared with many colleagues.
- Response
- –
- You Said
- Emer showed the group the hospital passport for people with and learning disability and autism, she also showed a version for people with autism without a learning disability.
- Response
- Andrea asked can we put both versions on the Ordinary Lives’ website.
- You Said
- Alison asked if a person is admitted to a different hospital than the one that their passport came from, would it still be accepted.
- Response
- Emer said they would ask if the person has a hospital passport or something similar. So yes, but she is promoting the Hospital passport from West Suffolk.


Item 3. What did we talk about in 2024
- The group spoke discussed what we spoke about in 2023. The group separated into smaller groups and wrote spoke about topics they would like to cover in 2024.
- Some of these topics are: Men's Health, screening, Physical activity, Maternity support for autistic people, stroke association.


Action plan
| Action | Date | Organiser | Status |
|---|---|---|---|
| Email the manufacturers of buzzy Four Shots to ask them if there is this function to reduce the amount vibration for people who do not like the sensation. | 01/02/2024 | Jerry Newman, Mark Conquer, Chewy | Not started |
| To put different My Health Passport on Suffolk Ordinary lives website and explain difference. | 01/02/2024 | Ace Anglia | Complete |