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My Life Focus Group: 19th April 2023

Meeting date: April 19, 2023

Focus Group:

Agenda item

  • Group of people round a table giving feedback on something
    Item 1. What you said about reviews
    This whole meeting was dedicated to coming up with questions and responses to prepare for July’s meeting.

Who attended


Self Advocates


Families & Carers


Key Organisations


Provider Organisations


Board Members

Item 1. What you said about reviews

  • We know people are having telephone reviews but are not that these were actual reviews.
  • I had a review last year, but it was online.
  • I am aware of many people in services who have not had a review in the last 2 years.
  • I am bit worried about meeting my social worker today.
  • People are not given good choices and end up being stuck in day services.
  • People need to understand what opportunities are available.
  • Social workers are just sending people to day service because it’s easier for them.
  • Ordinary life means a different thing to each of us this needs to be taken into consideration.
  • Why does it all come back to money?
  • People are not being told that is ok to say that they don't have to do something if they don’t like it.
  • From my point of view my issues are not resolved and I can’t even get the help from the people that I need to contact.
  • I don’t feel that I am listened to.
  • I feel that most of my issues are no sorted out.
  • Sometimes I think because the information is made 'easy read' support workers, carers don't feel the need to sit and explain it and have a conversation.
  • Reviews need to happen I’ve not had mine since I’ve moved on to recreate Enterprises, I love it there but a review really needs to happen.
  • Social workers need to explain things a bit better.
  • We should never assume people only communicate in one way. We are all different so that must be acknowledged in the way we interact.
  • The Accessible information standard needs to be implemented in the way the ICBs use it, making sure information is accessible for everyone.
  • Social workers should not be judgmental to people with disabilities like me.
  • Real person-centred thing needs to be applied for everybody.
  • We are concerned about the quality of phone reviews.
  • Some people and providers are not aware that a phone review has happened, this is a concern around the quality of that review, preparation time and support.
  • We are aware that there is work going on around the different ways to communicate or make an ACS referral.
  • People said they are happy to help with this as communication is key to people being empowered to make changes in their lives.
  • Create top tips leaflet preparing people for reviews/used by the support worker too.
  • Good support workers are central to accessing new things.
  • My son has good proactive support workers who make a difference. GOOD TRAINING is essential.
  • All organisations should be focused on Total Communication.
  • My son is nonverbal, and his support team are developing a pictorial comms board. They use photos a lot with him, and it makes a big difference to him.
  • Its all about changing mindsets & cultures and accepted practices.
  • Anecdotal evidence often ignored but it is our most powerful way of effecting change & understanding needs.
  • This can be done by highlighting stories through film and other interactive ways.
  • Its all about changing mindsets & cultures and accepted practices.
  • Can you clarify how social worker allocation plays out across the county, what is the process?
  • “It would be handy if people were given the name of a social worker who would work with them.”
  • “It would be best if a social worker can build a relationship with the person and have a history with them.”
  • Is there anything I can do to help me to get a social worker?
  • Can people have a named social worker, If, they do how do they do this, and how do they keep that social worker?
  • How are people allocated and do different ways get different results?
  • Is there easy read information about the different routes to get a social worker?

Action plan

All this information to go back to James and Jez to form next meeting. 20/06/2023 David Hill (Ace Anglia) Complete
My live Minutes April 2023

Easy Read Minutes for My Life Focus Group: 19th April 2023

Opens or downloads a pdf

pdf, 4 MB

My life Presentation April 2023

Presentation for My Life Focus Group: 19th April 2023

Opens or downloads a pdf

pdf, 3 MB

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