A group of 50 mums of kids with Down’s syndrome has created a Carpool Karaoke-style video to raise awareness of children with an extra chromosome. Mums who were part of the Facebook group “Designer Genes”, who all had a child with Down’s syndrome … Continue reading Designer Genes video, celebrating World Down Syndrome Day 2018
Latest news
It’s World Autism Awareness Week!
Pioneered by the National Autistic Society (NAS), World Autism Awareness Week aims to draw attention to the 700,000 people living with autism in the UK – both to educate those unaware of the condition, and to help make the world friendlier to those … Continue reading It’s World Autism Awareness Week!
Ace Anglia, Expert Networks: Health Network Meeting
Ace Anglia are setting up some new Expert Networks. These will support the workstreams of the Learning Disability Strategy to co-produce projects. The Networks will also offer a space for people to learn more about the areas that they are interested … Continue reading Ace Anglia, Expert Networks: Health Network Meeting
Ipswich Hospital: Learning Disability Action Group
Ipswich Hospital has set up a new Learning Disability Action Group. This is a group for people with a learning disability and / or autism who use the Ipswich Hospital and would like to influence change. The group is facilitated by Roger Blake, the … Continue reading Ipswich Hospital: Learning Disability Action Group
Learning Disability Partnership Board: February Meeting
The Partnership Board met for the first time in 2018 on February the 20th. 2018 brings some exciting new changes for the Board. We welcome three new members. Representatives from Cephas, Green Rose Care and Thera will now be active members of the … Continue reading Learning Disability Partnership Board: February Meeting
National Autistic Society – AGM
The National Autistic Society (Lowestoft and North Suffolk Branch) is holding their 2018 AGM on the 7th March. The meeting will be held at the Seagull Theatre, Morton Road, Lowestoft, NR33 0JH. The meeting will run from 9:45am - 2:45pm. … Continue reading National Autistic Society – AGM
Family Carer Workstream members
Suffolk’s Learning Disability Partnership would like to invite you to be part of implementing the five-year Learning Disability Strategy. The Strategy is underpinned on the simple vision that “people with learning disabilities, live good lives as … Continue reading Family Carer Workstream members
The SEND Young Person’s Network
Introducing the SEND Young Person's Network (SENDYPN). What is it? The YPN is a growing network (a bit like a Facebook group) of young people who want to have their say to help shape the services and support provided in Suffolk for children and … Continue reading The SEND Young Person’s Network
A Support Worker rep on the Learning Disability Partnership Board
The Suffolk Learning Disability Partnership is an independent partnership of self-advocates, family carers, health and social care commissioners, police, Healthwatch, voluntary organisations and housing providers. What is its Purpose? The … Continue reading A Support Worker rep on the Learning Disability Partnership Board
Support Worker & PA Network meeting
On Thursday 11th of January the Learning Disability Partnership hosted the first meeting of the Support Worker & PA Network. The network was of the original priorities of the Learning Disability Strategy. Support Workers are integral to the … Continue reading Support Worker & PA Network meeting
Suffolk People First, March 2nd 2018
Suffolk People First is a county-wide self-advocacy event hosted by Suffolk based advocacy organisation, Ace Anglia. The quarterly held events bring together the People First Groups from across Suffolk, family carers, self-advocates and health … Continue reading Suffolk People First, March 2nd 2018
Joint Learning Disability Strategy, Year 2 Review & Celebration
Head over to the Useful Information page to read the Review & Celebration for the 2nd year of the Learning Disability Strategy. https://suffolkordinarylives.co.uk/useful-information/ … Continue reading Joint Learning Disability Strategy, Year 2 Review & Celebration
Angela’s holiday
Angela recently went on a holiday with a few friends to Hemsby. She goes to the Elvis week every September, and has already booked for next year. She said she had a great time, and wanted to show off her new jacket! … Continue reading Angela’s holiday
Mark’s new piano
Mark, one of the strategy Champions, has recently got a new electric piano. Please go to the stories page to see a video of Mark playing. The second clip is one of Mark's own piece 'Echoes in the night'. https://suffolkordinarylives.co.uk/stories/ … Continue reading Mark’s new piano
Co-production Event
On September the 13th, Matthew Foulger , Toby De Roy (Strategy Champions) and Anya Wooddissee (Co-production project lead), went to an event in Cambridge all about co-production. There were people there from the whole of the Eastern region, this … Continue reading Co-production Event
Meeting at the Houses of Parliament
On Tuesday 5th September Karl Butler (Champion for Work & Purpose) & Anya Wooddissee (Co-production Project Lead) attended an All Party Parliamentary Group on learning disability. This meeting was all about Making voting accessible. The … Continue reading Meeting at the Houses of Parliament
Congratulations
Karl Butler, a Strategy Champion for Work & Purpose, has been successful gaining a Learning Disability Advisor role at NHS England! He will be working across the Midlands & East. 'I'm excited & nervous, I've been dreaming about having … Continue reading Congratulations
Suffolk People First
Suffolk People First is a county-wide self-advocacy event hosted by Suffolk based advocacy organisation, Ace Anglia. The quarterly held events bring together the People First Groups from across Suffolk, family carers, self-advocates and health … Continue reading Suffolk People First
Support Worker & PA Network planning event
On Thursday 3rd August the Learning Disability Partnership hosted a planning session for the Support Worker & PA Network. The network was of the original priorities of the Learning Disability Strategy. Support Workers are integral to the … Continue reading Support Worker & PA Network planning event
My Life, My Future Consultation
My Life, My Future is Suffolk County Council's response to the Joint Learning Disability Strategy. Lots of work has been done in co-production to listen to what people want from services. Suffolk County Council wants to hear what you think about … Continue reading My Life, My Future Consultation
