My Health
The My Health Focus Groups are for anyone who has an interest in the Suffolk Joint Learning Disability Strategy this could be people with a learning disability, autistic people, families and carers, provider organisations, members of the public, key organisations and businesses.
There are 4 My Health Focus Groups a year, which are online and face-to-face.
The My Health Focus Group is co-chaired by:
- Wendy Scott, Head of Quality Mental Health Learning Disability and Autism, Suffolk & North East Essex ICB
- Mark Conquer, Expert with Experience Project Worker, Ace Anglia
The My Health Focus Group is about working in co-production. Guest speakers from health and social care come to talk about topics highlighted by the Group. It is really important that people with a learning disability come to the My Health Focus Group to talk about what changes they want to see happen across Suffolk.
Contact: info@suffolkordinarylives.co.uk for more information
The My Health Focus Group wants to:
- Showcase and celebrate best practice.
- Identify projects to work together on.
- Explore how we want the group to work, communicate with each other and develop plans to ensure the vision of the strategy is supported:
- People with learning disabilities live good lives as part of their community, with the right support, at the right time, from the right people.
- The findings from this coproduction will feed back into the Suffolk Learning Disability Partnership Board to support and enable change.
My Health Focus Group: 20th October 2023
Meeting date: October 20, 2023
Agenda Item
- Item 1.
- 111 Service with Zoe Pursglove and Tammy Tuson
- Item 2.
- Ipswich Hospital Update – Roger Blake
- Item 3.
- Social Prescribing – Nikki Betts and Joel Mayo
- Item 4.
- Learning Disability Annual Health Check Steering Group – Alison Sadler SNEE ICB
- Item 5.
- Any Other Business
Who attended
6
Self Advocates
2
Families and Carers
1
Key Organisations
5
Provider Organisations
3
Board Members
Guest Speakers
- Item 1.
- Zoe Pursglove & Tammy Tuson – 111 Service
- Item 2.
- Roger Blake – Ipswich Hospital
- Item 3.
- Nikki Betts & Joel Mayo – Ace Anglia
- Item 4.
- Alison Sadler – SNEE ICB
Item 1. 111 Service with Zoe Pursglove and Tammy Tuson
- You Said
- Is there a specific time that out of hours operates:
- Response
- Yes, out-of-hours operates from 6:30 pm to 8:30 am as well as at weekends and bank holidays.
- You Said
- When 111 started I was being charged £2.50 a minute to call the number.
- Response
- It is a free call service now, and you can even make the call if you have no credit on your mobile.
- You Said
- Do you offer long term medicines like for diabetes?
- Response
- Any long term medicines we would signpost you back to your GP but can help out with short term prescriptions if you have run out. We also have the diabetic pathway on 111 who can see you to a clinical assessment team.
- You Said
- How long has 111 being going for?
- Response
- It has been operating as 111 for over 11 years now.
Item 2. Ipswich Hospital Update – Roger Blake
- You Said
- When someone comes into the hospital, how do they find an Learning Disability Nurse?
- Response
- I search through all the patients on the hospital system who have a Learning Disability diagnosis that is in the hospital and that way I know someone is in.
- You Said
- How is a learning disability highlighted in a hospital?
- Response
- There is a flag on the computer records that alerts staff of a learning disability.
- You Said
- What happens when you are not in?
- Response
- If I am away or ill there will be staff that have been trained on learning disabilities.
- You Said
- We are not not getting information sent to us in easy read.
- Response
- –
- You Said
- Some people used to attend the adult user group at the hospital.
- Response
- –
Item 3. Social Prescribing – Nikki Betts and Joel Mayo
- You Said
- Is it something you enjoy doing Joel?
- Response
- Yes I’ve been a peer educator for almost 10 years.
- You Said
- Is it different working with GP Surgeries?
- Response
- Its different to what I used to be doing before doing Annual Health Checks as a peer educators I was a health champion in the workstream.
- You Said
- Care co-ordinators – is this someone you could see at a GP?
- Response
- Different practices do things differently, so some places could help someone attend a health check. It varies between surgeries.
Item 4. Learning Disability Annual Health Check Steering Group – Alison Sadler SNEE ICB
- You Said
- Some practices do not have the right scales for people to be weighed. Sometimes they just ask the person how much they weigh.
- Response
- The ICB to ask GP practices what type of scales they have in their practices in order to weigh people with learning disabilities and autistic people.
Action plan
| Action | Date | Organiser | Status |
|---|---|---|---|
| Self-advocates have said they have not been receiving easy read hospital appointments – Feedback to Roger and Emer. | 20/10/2023 | Wendy Scott, ICB | In progress |
| Which GP surgeries have weighing chairs – Carry out a GP survey on equipment availability. | 20/10/2023 | Ace Anglia / SNEE ICB | In progress |
| Peer Educators and self-advocates to talk through annual health check survey questions and what to call it – a survey/feedback/questionnaire? – Wendy/Alison/ACE | 20/10/2023 | Ace Anglia | In progress |
| Peer Educators in attendance to report back to Health peer educators on what was discussed at the My Health Focus Group around Annual Health Checks. | 20/10/2023 | Ace Anglia | In progress |
| The ICB to ask GP practices what type of scales they have in their practices in order to weigh people with learning disabilities and autism | 20/10/2023 | Alison Sadler, ICB | In progress |
| Roger to look into accessible information and ensure that people are receiving appointment information etc in accessible format. | 20/10/2023 | Roger Blake, NHS | In progress |
| Roger to work with ACE Anglia to put the adult user group at the hospital back in place. | 20/10/2023 | Roger Blake and Ace Anglia | In progress |
Presentation: My Health Focus Group 20th October
pdf, 6 MB