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What can Patient and Public Involvement (PPI) contributors in research actually do?

Would you like to learn more about the different roles that patients and members of the public involved in health research can hold? About this event Date and time Thu, 16 June 2022, 13:00 – 14:00 A 60-minute information session for members of the public based in the UK. The NIHR Cambridge Biomedical Research Centre (BRC) is a partnership between the University of Cambridge and Cambridge University Hospitals (CUH) to support health research that makes a difference to the lives of…

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Coronavirus and People with Learning Disabilities

The Coronavirus and People with Learning Disabilities Study The Coronavirus and People with Learning Disabilities Study directly interviewed adults with mild/moderate learning disabilities at three time points over 12 months (Cohort 1). There was also an online survey at the same time points with family members or paid carers of people with severe/profound learning disabilities (Cohort 2). The three waves of data collection took place in December 2020 – February 2021; April – May 2021; and July – August 2021.…

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Online event to help carers in Suffolk access support

To mark Carers Rights Day carers across Suffolk are invited to join an online event to find out about the support available to them. The event is open to everyone and will include speakers, information on the support available to carers, what rights carers have and provide the chance to ask questions to experts. Many people are taking on more caring responsibilities for their relatives and friends who are disabled, ill or older and who need support. Each year, Carers…

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Questions for Pete Devlin, Assistant Director of Learning Disabilities, Autism and Mental Health at Suffolk County Council

Pete Devlin, Assistant Director of Learning Disabilities, Autism and Mental Health at Suffolk County Council, answers questions from some self-advocates with learning disabilities and/or autism. Mark wanted to know when he was going to have full support back again as he haven’t had any physical support since the beginning of lockdown from Sense and Change. Joel wanted to know about mental health and how to get information for it. Andrew wanted to know when work placements and day centres are…

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Coronavirus: Question and answers for people who get a personal budget or personal health budget

The Government have written some guidance aimed at people who receive support via personal budgets or personal health budgets – and take this via a direct payment. It is also relevant to individuals employed via the direct payment, family members, local authorities, clinical commissioning groups (CCGs) and providers. Please see a link to the guidance below. Who the Q&A is for For people who receive support via personal budgets or personal health budgets – and take this via a direct…

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