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Tagged with: children

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Decision support tools: making a decision about a health condition

These decision support tools are designed to support shared decision making between people and a clinician. People may find they are useful before, during or between consultations depending on their care pathway. These tools have been developed in accordance with The National Institute for Health and Care Excellence standards framework for shared decision making support tools, including patient decision aids. You can find all of the decision support tools by clicking this link: https://www.england.nhs.uk/publication/decision-support-tools-making-a-decision-about-a-health-condition/

Friendly students taking selfie over yellow background

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Apprentice Mental Health Coordinator for Young People

A message from Suffolk County Council’s engagement hub team: Job description Suffolk County Council – Ipswich IP1 2BX £18,333 per annum (pro rata) 37 hours per week  Fixed Term Apprenticeship for 18 months We are committed to flexible working, so please read the Job and Person Profile to find out about the types of flexible working available for this role. We particularly welcome disabled people, male, Asian and LGBT+ applicants because they are under-represented in this directorate. A great opportunity to join Suffolk County Council’s Engagement Hub…

two people who have been supported by Remap

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Remap

Sharing information from the charity, remap. Remap is a charity that helps disabled people of all ages to live more independent lives. Our network of skilled volunteers design and custom-make equipment free of charge. We help to improve quality of life and increase independence for disabled people of all ages, providing solutions to everyday problems when there is nothing commercially available. We design and custom-make equipment for each individual because everyone’s needs are different. Our network of skilled volunteers respond to thousands of…

photos of various people receiving support

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Suffolk Advocacy Service

Suffolk Advocacy Service is delivered by a partnership which includes POhWER, Suffolk Family Carers, ACE Anglia and Suffolk User Forum. The Suffolk Advocacy Service delivers the following services: Independent Mental Capacity Advocacy (IMCA) including Deprivation of Liberty Safeguards (DoLS) and Relevant Person’s Paid Representative (RPPR) Independent Mental Health Advocacy (IMHA) Care Act Advocacy NHS Complaints Advocacy Children’s Advocacy Community Advocacy including Community Mental Health Advocacy, Carers Advocacy Support, Group Advocacy, Learning Disabilities Advocacy and Child Protection Advocacy Peer Led Mental Health Inpatient Advocacy Drop Ins How do…

Suffolk parent carer forum logo with the strapline working towards a brighter future for suffolk's children and young people

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Suffolk Parent Carer Forum Open Forum Event

Suffolk Parent Carer Forum invite you to join them for the first ever Open Forum Event “We cannot wait to finally be able to meet parent carers in person and have the opportunity to discuss any concerns or feedback with parents carers and find out what else we can do as a forum to better represent your views and experiences.” The forum will include representatives from: PACT Activities Unlimited BEANS Sendiass The Vaccine Inequalities team Suffolk County Council Suffolk’s Clinical…

photos of various people receiving support

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Suffolk Advocacy Service

Suffolk Advocacy Service is delivered by a partnership which includes POhWER, Suffolk Family Carers, ACE Anglia and Suffolk User Forum. The Suffolk Advocacy Service delivers the following services: Independent Mental Capacity Advocacy (IMCA) including Deprivation of Liberty Safeguards (DoLS) and Relevant Person’s Paid Representative (RPPR) Independent Mental Health Advocacy (IMHA) Care Act Advocacy NHS Complaints Advocacy Children’s Advocacy Community Advocacy including Community Mental Health Advocacy, Carers Advocacy Support, Group Advocacy, Learning Disabilities Advocacy and Child Protection Advocacy Peer Led Mental Health Inpatient Advocacy Drop Ins How do…

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Reason Not the Need The ‘Down Syndrome Bill’ is a retrograde step

Ramandeep Kaur and Stephen Unwin 7 December 2021. We’re sharing part of the article below. To read the article in full, please click this link: https://bit.ly/3x7LgX3 Ramandeep Kaur and Stephen Unwin fear new legislation will divide their children based on an old discredited medical model which pathologises disability. Any legislation which defends the rights and champions the opportunities of a historically oppressed minority must surely be an unequivocally good thing. Standing up for people who have Down’s syndrome is something…

photos of 4 families

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Is the Children and Families Act 2014 fit for purpose?

The Select Committee on the Children and Families Act 2014 launches its inquiry into the Children and Families Act 2014 and is inviting written evidence contributions. Chair’s comments The Chair of the Committee, Baroness Tyler of Enfield, said: “The Children and Families Act 2014 has a significant impact on the lives of a great number of children and families. It affects the education and care children and young people receive, it can determine how family separation takes place, how those in care…

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Learning disabilities needs assessment 2021

There are approximately 1.5 million people have a learning disability in the UK. About 350,000 people have a severe or profound learning disability. This number will increase in the coming decades. Therefore, it is critical to understand the changing needs of this population. People with learning disabilities face inequalities in health and social outcomes. We must understand these inequalities and changing needs to prioritise planning and resources. A needs assessment was initially undertaken in 2014. The outcome of this work…

young persons network projects and people

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Young Person’s Network

Want to know more about the Young Person’s Network and how to get involved? Watch the video below! Video not displaying? Click here: https://www.youtube.com/watch?v=3c_8xmKR0Eo&list=PLhhTU9a-r64h9329NwCpJ_qzx2cV05ASG&index=3&ab_channel=TheSourceforyoungpeopleinSuffolk

drawing of what the hospital site cold look like

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West Suffolk Hospital: upcoming engagement workshops

As plans for the new hospital progress, West Suffolk Hospital want to continue conversations with the local community to help shape the designs. A new series of workshops have been planned to help West Suffolk Hospital staff understand what matters to you. The workshops will last approximately 60 minutes and will be interactive. The workshops will be held between the 2nd and 12th of March. There are lots of different workshops available to attend. Please click in the link for…

young boy playing with toys

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Local Offer News: February 2022

Please see link below to updates on the work happening to improve SEND Services in Suffolk, and other SEND news, events and resources. In this edition there is news and updates on the following: SEND Capital Programme UpdateIntroducing Suffolk Parent Carer ForumChildren’s Mental Health WeekPACT – Parents and Carers TogetherActivities Unlimited – February Half Term ActivitiesKeeping children safe on the internetThe SEND Young Person’s NetworkAlternative Provision – have your say! Please click here to see all the updates: https://mailchi.mp/suffolk.gov.uk/introducing-local-offer-news#AP%20survey

front page of the coronavirus vaccine guide on vaccinations for 12 to 15 year olds

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Coronavirus vaccine for children and young people, aged 12 to 15

 This easy read guide is for children and young people and their families and carers. You can view the guide by clicking the link below. Link not displaying? Try here: https://suffolkordinarylives.co.uk/resources/coronavirus-vaccine-for-children-and-young-people-aged-12-to-15/

families smiling and hugging each other

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Suffolk Family Carers: parent carer survey

A message from Suffolk Family Carers: “In the coming months we will establish peer support groups and workshops for parents and carers of children and young people with neurodevelopmental difficulties.” “To ensure we meet the needs of parents and carers we would be grateful if you could help us understand the formats that work best for you.” “The information you provide is collected anonymously and we have no way to link your responses back to you.” Neurodevelopmental difficulty is an overarching term to describe…

family sitting on a shingle beach looking out to see

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Climbing the Rainbow

A message from Melanie: “Hi I’m Melanie, mother of two lovely children, one of which is wonderfully autistic. I am the creator behind the blog Climbing the Rainbow.” “The blog is about my autistic son Harry and our journey, as well as providing support & help by providing free visual aids & craft ideas.” “When Covid-19 struck it highlighted to me the lack of support for individuals with additional needs, so it’s then when I started creating free visual aids…

Seb Reeves smiling at camera sitting in coffee shop

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SEND Young Person’s Network

Sharing news from the SEND Young Person’s Network: “It was time to shine and showcase all the hard work and dedication over the past year of the SEND Young Person’s Network.” “The group came together to present their work on inclusion in the community, travel, and transitions. They have achieved so much, and it was a pleasure to present.” “We had our very own Sebastian Reeves as our host, introducing the presentation and you can check out his video by…

young man tending to his plants in a greenhouse

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Improving Special Educational Needs and Disability (SEND) Services in Suffolk: November 21 update

A message from Ros Somerville, Assistant Director, Inclusion, Children & Young People’s Directorate, Suffolk County Council Dear Parent / Carer It has been two months since we published the findings of the Lincolnshire Independent Review into SEND Services in Suffolk.  I am mindful that one of the things we must do is communicate better with you as families, and so what follows is a short update on what we have done so far and what our next steps will be. Over…

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National strategy for autistic children, young people and adults: 2021 to 2026

The government’s national strategy for improving the lives of autistic people and their families and carers in England, and implementation plan for 2021 to 2022.

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The national strategy for autistic children, young people and adults: 2021 to 2026

The government’s national strategy for improving the lives of autistic people and their families and carers in England, and implementation plan for 2021 to 2022. Details The strategy builds on and replaces the preceding adult autism strategy, Think Autism, which was published in April 2014. It extends the scope of the strategy to children and young people for the first time. The focus of this new strategy and implementation plan have been informed by the government’s call for evidence on the review…

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Transition to Secondary School: Gathering Your Views

These events from Suffolk SENDIASS may be of interest to family/carers of children moving from primary school to secondary school. Information about the events below: We want to make sure that the training and information we put together matches what families want to find out, to help them feel more confident. We are therefore offering 2 informal online sessions to gather the questions parents and carers have around transition to secondary school so they can tell us what kind of…

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Free workshops for parents and carers to support the emotional wellbeing of young people

Free online workshops are being held in April and May to help parents and carers support the mental health of the children they care for.  The workshops, provided by NSFT’s psychology in schools team have helped over 1800 people since the first workshop in January.  Workshops available include: Understanding the adolescent brain: How to support our teenagers with their emotions Supporting young people with sleep Supporting young people with anxiety Supporting young people with low mood. What people say about…

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Norfolk and Suffolk NHS Foundation Trust engagement sessions

Norfolk and Suffolk NHS Foundation Trust (NSFT) needs your feedback! Hosted by NSFT Governors, NSFT will be holding 6 online events to help us focus on what’s important to the people who use our mental health services and their carers. Attendees at last year’s event helped shape our Annual Plan and we will start the session by updating you on our progress over the last 12 months. Governor Priorities identified from last year’s events were: · Quality Improvement: improving access…

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We Belong

In the autumn of 2020, Disability Rights UK launched a new campaign – We Belong. “From September to November, we gathered the opinions of disabled people fromacross the country, young and old, from all kinds of backgrounds.We sought comment through our newsletters, social media, email and phone, andvirtual meetings. We ran Zoom meetings on transport, employment, the builtenvironment, housing, participation, services and retail.We held discussions with groups of disabled people experiencing multiple forms ofdiscrimination including people from BAME backgrounds, women,…

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SENDIASS online sessions

Please see information below from Suffolk SENDIASS. Suffolk SENDIASS stands for Special Educational Needs and Disabilities Information Advice and Support Service. It is a confidential and impartial information, advice and support service on issues related to Special Educational Needs and Disability (SEND). Please continue to guide families to use our service. We have lots of information on our website and we can talk through any specific worries, questions or concerns about SEND and in relation to the latest lockdown measures/school closures.…

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