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experiences

Patients and carers wanted for an online workshop on diagnosing urinary tract infection (UTI)

Sharing details of an opportunity for patient and carers to get involved in a workshop on diagnosing urinary tract infections to get the views from people to help improve diagnosis and how to best work with people to identify issues.  The Office … Read Article about Patients and carers wanted for an online workshop on diagnosing urinary tract infection (UTI)

Leading charities call for accessible voting for all

Leading charities like Mencap and Sense have co-signed a letter from United Response, calling on government to guarantee accessible voting for people with disabilities and autism. There are approximately 1.5 million people with a learning … Read Article about Leading charities call for accessible voting for all

The Voice You Never See

Sharing details of a new disabled community arts project, ‘The Voice You Never See’. This project is run by Suffolk-based group Poetry People and funded by Suffolk County Council's COVID Continuity Fund for Culture. The project has … Read Article about The Voice You Never See

Safer Online Lives research project

The Safer Lives Online project from The Tizard Centre is looking for people with learning disabilities to take their survey. There is a £10 Love2Shop voucher available for those taking part. About the project The internet and social media … Read Article about Safer Online Lives research project

Climbing the Rainbow

A message from Melanie: "Hi I'm Melanie, mother of two lovely children, one of which is wonderfully autistic. I am the creator behind the blog Climbing the Rainbow." "The blog is about my autistic son Harry and our journey, as well as providing … Read Article about Climbing the Rainbow

Autism Peer Support

Have a say in the future of Peer Support for Autistic people Health Education England (HEE) are exploring what capabilities are required for people that become peer support workers for autistic people. These capabilities will cover the skills, … Read Article about Autism Peer Support

#whatarewemissing: November 2021 event

Sharing an invite from Ipswich & Suffolk Council for Racial Equality (ISCRE): The event will provide an environment for our community to give honest feedback to the system on health services. Attendees will have the opportunity to share … Read Article about #whatarewemissing: November 2021 event

Strategic VASP meeting

Sharing details of an upcoming meeting: 'Let’s Talk About Women's Mental Health and Wellbeing in Suffolk' What is the meeting about? Several speakers shall be contributing, sharing experience and helping us think about how this effects ourown … Read Article about Strategic VASP meeting

Would you like to help families of children and young people with SEND plan for the future?

A new FREE course developed to help families of children and young people with special educational needs and disabilities (SEND) plan for the future. The SLT Group are looking for parent carer volunteers to use their own experience to guide and … Read Article about Would you like to help families of children and young people with SEND plan for the future?

Opportunity to be part of a trial of a new game “Staging Posts on the Journey of Life”

A message from Gail Cardy, Transformation Project Manager – Mental Health, West Suffolk, Ipswich & East and North East Essex Clinical Commissioning (ICS).   "I am writing to invite you to take part in a trial run of a small group … Read Article about Opportunity to be part of a trial of a new game “Staging Posts on the Journey of Life”

Autism friendly screenings

A survey from Dimensions. "We want to hear about people’s film experiences, especially with sensory friendly screenings. Please help by completing and sharing our survey and prize draw." "As Covid-19 restrictions ease and autism friendly … Read Article about Autism friendly screenings

We want to ask you…What has the pandemic been like for you?

A unique webinar from PCPLD Network: planned, produced and presented entirely by people with learning disabilities About this event They wrote this invitation to a range of people, including keyworkers and public figures: "We are the … Read Article about We want to ask you…What has the pandemic been like for you?

Digital health and care – A project from Healthwatch Suffolk

A summary of findings from Healthwatch Suffolk project about digital health and care: This project – In brief Throughout the year 2020/21, people shared their experiences of using digital NHS and social care services with us. The aim has been … Read Article about Digital health and care – A project from Healthwatch Suffolk

The Future of Lived Experience: a conference hosted by the Institute of Community Reporters

Everyone has a story to tell – we know this wholeheartedly, but right now, it also feels like everyone is asking for our stories and there is a risk of storytelling fatigue setting in. How do we ensure that people who share their lived experiences … Read Article about The Future of Lived Experience: a conference hosted by the Institute of Community Reporters

PCPLD Network Podcast: Ep. 4 ‘When Deaths Go Wrong: The Story of Richard Handley’

Listen to Sheila Handley @PinguG talk with @TuffreyWijne about her son Richard, who had Down syndrome and died of constipation. In this episode Sheila Handley tells the story of her son Richard, who died in 2012 from constipation at the age of … Read Article about PCPLD Network Podcast: Ep. 4 ‘When Deaths Go Wrong: The Story of Richard Handley’

The NHS has recently launched the 'Help Us, Help You' campaign. The campaign encourages people to contact their GP if they are worried about a symptom that could be cancer. Find out more: NHS.uk/cancersymptoms ...

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