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Tagged with: Healthcare

front cover of the full autism research strategy

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Five-year NHS autism research strategy for England

A five-year NHS autism research strategy, to facilitate the use of the best current evidence when making decisions about autism services provided by or paid for by the NHS in England. Introduction Autism is not a rare condition (about 1–2% of England’s population is autistic). Autism should not bar anyone from a happy, healthy and long life; yet relative to their non-autistic peers, autistic people frequently experience the following: • More mental ill-health. • Greater likelihood of poor physical health…

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Your care, your way

Clear, understandable information is important to help you make the right health and care decisions. Join this national Healthwatch campaign, and have your say on what needs to change. Everyone should be told about healthcare in the way they need it. ‘Your care, your way’ aims to: Find out how well health and care services deliver the Accessible Information Standard. Help people to know their rights to accessible information from services. Find out who else has problems understanding information about…

male nurse smiling at a patient

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Creating accessible healthcare environments for people with autism

Staff can use a simple environmental checklist to help make healthcare environments more accessible to people with autism. An article from Stephen Simpson, senior autism practitioner, South West Yorkshire Partnership NHS Foundation Trust. About this work Over 1% of the UK population has a diagnosis of autism and, of this group, half will also have a learning disability. Studies show that people with autism die 12 years earlier than the general population and one reason is poor access to health services.…

people exercising in groups

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Health and Wellbeing event: Hadleigh and the surrounding areas

Abbeycroft Leisure are working with the Babergh District Council, Ipswich & East Suffolk CCG and social prescribers in the Hadleigh area to offer a FREE health and wellbeing event. When is the event? Thursday 25th November at Hadleigh Pool and Leisure, 1-5pm What is the event about? This event is for residents of Hadleigh and surrounding areas, aged 50 and over who would like to know more about small changes in lifestyle that can make a big difference to health. The afternoon…

image of the Challenging Behaviour Foundation logo

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Legal resources from the Challenging Behaviour Foundation

The legal resources directory from the Challenging Behaviour Foundation is a series of practical resources designed to help you get the information you need about the law and rights, covering a range of topics. The resources cover things such as: Special Educational Needs (SEN) Social care (adult and child) Carers’ rights Family Law Finance Direct payments Personal Independence Payment (PIP) Healthcare Do Not Resuscitate orders (‘DNRs’) NHS complaints Mental Health Act and ‘sectioning’ Mental capacity and best interests Deprivation of…

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Hospital care for young people with a learning disability

Do you know what Transition is? It’s the process when someone moves from children’s to adult services. Mencap have made a new easy-read guide about the differences you might find if you go to hospital as you get older. You can view and download the document below. If the link isn’t displaying, please click here: https://suffolkordinarylives.co.uk/information/hospital-care-for-young-people-with-a-learning-disability/

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‘Hear me, See Me’ Autism workshop

Autism Bedfordshire are running ‘Hear Me, See Me’ workshops online for people in the East of England. Inequalities and rights accessing healthcare – an online workshop for parents/carers A workshop for carers or parents of autistic adults in the East of England understanding inequalities when accessing health care services. About this event Attendees will discuss: How inequalities impact autistic individuals What reasonable adjustments are What support is available What to do if you are unhappy with how you are able…

health and care videos website homepage displayed on an iPad.

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Health and Care videos

Health and care videos is a useful website full of helpful and accessible videos. “Our aim is to help people to manage their health and wellbeing, alongside the care provided by healthcare professionals.” “Our videos have been written by medical scriptwriters, and reviewed by NHS clinicians. The videos are reviewed regularly to ensure that they provide up-to-date information.” “If you have any questions about your own health or the information contained within the videos, please speak to a healthcare professional.”…

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Care Quality Commission: Protect, Respect, Connect

An easy-read report from the CQC (Care Quality Commission) looking at decisions about living and dying well during COVID-19. View or download the report here: https://www.keepsafe.org.uk/dnacpr Press play for audio Download

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2021 Census

What is the census? The census is a survey that happens every 10 years and gives us a picture of all the people and households in England and Wales. The next census takes place on Sunday 21 March 2021. Your answers to the census questions will help organisations make decisions on planning and funding public services in your area, including transport, education and healthcare. When to complete your census Every household should complete the census on Sunday 21 March 2021 or as…

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Coronavirus Yellow Card reporting site

The Yellow Card scheme collects and monitors information on suspected safety concerns or incidents involving: medicines, medical devices, and e-cigarettes. The scheme relies on voluntary reporting of suspected safety concerns or incidents by healthcare professionals and members of the public (patients, users, or carers). The purpose of the scheme is to provide an early warning that the safety of a product may require further investigation. Further information about the Yellow Card scheme, including its contribution to identifying safety issues can be found…

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Clinical trials: an easy-read guide

Ace Anglia, together with Thinklusive, West Suffolk Hospital & a local Patient Research Ambassador have co-produced an easy-read guide to clinical trials. Read more about the project This project is a collaboration between West Suffolk Hospital Clinical Research Practitioners, Thinklusive and ACE Anglia, an advocacy organisation for adults with learning disability or/and with autism. The project connected Clinical Research Practitioners as local researchers with adults with learning disability or/and autism to produce accessible information about health research. The project: Connected…

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Learning Disability and Autism – 10 year planning meeting

Recently I went to an event in Newmarket. It was about 10 year plan for the NHS.  In the plan they have set out the top priorities. They are: Cancer, Cardiovascular and Respiratory, Learning Disability and Autism & Mental Health. It is currently under consultation and planning which is why there had been many events in England. I found the meeting interesting and productive and it’s seems that NHS are recognising that Autism is a separate condition. As an Learning…

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