Tagged with: self-advocacy

My Voice Focus Group 16th March Agenda

The Suffolk Learning Disability Partnership Board would like to invite self-advocates, families and carers, provider organisations, board members, key organisations, and wider partnership to the Suffolk Learning Disability Strategy: My Voice Focus Group. About this meeting The refresh of this strategy maintains our commitment to work together with partners across Suffolk, to work in new and different ways to ensure that people with learning disabilities live good lives as part of their community with the right support at the right time, from…

Thursday 28 July: Suffolk Learning Disability Strategy – My Voice focus group

The ‘My Voice focus group’ is a co-produced meeting, part the Suffolk Learning Disability Strategy 2021/22. About this event The Suffolk Learning Disability Partnership Board would like to invite self-advocates, families and carers, provider organisations, key organisations, and wider partnership members to an online meeting for the 2nd ‘My Voice focus group’. The refresh of this strategy maintains our commitment to work together with partners across Suffolk, to work in new and different ways to ensure that people with learning…

Equal Treatment: Challenging racism and health inequalities

Equal Treatment has been a short term project aiming to challenge racism and health inequalities faced by people with learning disabilities from minority ethnic communities and their families. The work has been led by three partner organisations, Changing Our Lives, Contact and Include Me Too. They have been working with self-advocacy groups, family groups and community groups to support them to think about their role and action they can take in challenging racism.  Join this session to hear about what they have learnt during…

The Suffolk Learning Disability Strategy: My Voice focus group

The ‘My Voice focus group’ is a co-produced meeting, part the Suffolk Learning Disability Strategy 2021/22 About this event The Suffolk Learning Disability Partnership Board would like to invite self-advocates, families and carers, provider organisations, key organisations, and wider partnership members to an online meeting for the 2nd ‘My Voice focus group’. The refresh of this strategy maintains our commitment to work together with partners across Suffolk, to work in new and different ways to ensure that people with learning…

Stop People Dying Too Soon

Digital Voice for Communities specialises in giving people a voice by supporting people to have a voice about issues that matter to them. They worked with Inclusion North and the group they support to make a film about a human rights issue close to their heart. They have created this powerful response to the latest LeDeR Annual Report. This report highlights how and why people with a learning disability die too soon. Click here for more information

Funding the Gap: Helping self-advocacy grow

Join Learning Disability England for the launch of Funding the Gap, a joint report into the funding of self-advocacy. About this event The Funding the Gap report is about how self-advocacy groups for people with learning disabilities are funded. This is important because lots of groups have closed because they do not have enough money, and others are struggling to survive. We want more self-advocacy groups to grow and stay strong. We interviewed members of self-advocacy groups and commissioners in…

Suffolk People First: May 2022

A message from https://www.aceanglia.com/ Suffolk People First will be back at Kesgrave Conference Centre for the first time in 2 over years. This will be a great chance to network and catch up with each other. The quarterly events bring together the People First Groups from across Suffolk, family carers, self-advocates and health & social care professionals. New For 2022 There will be a marketplace with loads of new projects and organisations. The events aim to: Work in co-production with…

Seb interviews Georgia Chimbani: Director of Adult and Community Services of Suffolk County Council

Self-advocate Seb wanted to ask Suffolk County Council’s new Director of Adult and Community Services some questions about herself, her role and how she is going to help people. Seb wrote the questions himself and Chewy asked them on his behalf. You can watch the video below. If the video is not displaying, please click the following link: https://www.youtube.com/watch?v=zACldfNLqy4

What sessions can you come to in May at Ace Anglia’s Talk Health and Wellbeing?

Talk Health and Wellbeing Virtual online meetings every Wednesday at 2:00PM Wednesday 5th May 2021: Cancer with the cancer care navigators and  the Macmillan Cancer Information and Support Centre Manager at Ipswich Hospital. Wednesday 12th May  2021: Grieving with Suffolk Cruse Wednesday 19th May 2021: Covid-19 conversations with the Primary Learning Disability Liaison Nurses Wednesday 26th May 2021: The new West Suffolk hospital with West Suffolk Hospital Foundation Trust To join a session email abbie@aceacanglia.com or phone 07949 322 812

People with learning disability and COVID-19 vaccinations

The PCPLD (Palliative Care for people with Learning Disabilities) Network recently hosted a webinar; ‘Why all people with learning disabilities and their carers should be prioritised.’ You can watch a video of the event on YouTube below. About this Event ‘People with learning disabilities are disproportionally affected by Covid-19, and at higher risk of dying. Yet, most people with learning disabilities are not on the vaccination priority list. We think this is wrong.’ ‘We urge the Joint Committee on Vaccination…

Suffolk People First online

About this event The next Suffolk People First Online is on Friday 26th February 2021. The quarterly held events bring together the People First Groups from across Suffolk, family carers, self-advocates and health & social care professionals. The event aims to: Work in co-production with delegates on implementing the Suffolk Learning Disability Strategy Bring people together Provide opportunities for people to talk directly to the Learning Disability Partnership Board Provide opportunities for people to share good news or stories Host…

Jerry Newman Talks About Co-Production

Learning Disability Liaison Nurse Jerry Newman talks about co-production between health, Ace Anglia and self-advocates. You can watch the video below. If the video is not displayed, you can watch the film here: https://www.youtube.com/watch?v=Kd-70LhIeSs&feature=youtu.be&ab_channel=SuffolkLearningDisabilityPartnership

Suffolk People First

A message from Ace Anglia: The next Suffolk People First Online is on Friday 4th December 2020. The quarterly held events bring together the People First Groups from across Suffolk, family carers, self-advocates and health & social care professionals. The events aim to: Work in co-production with delegates on implementing the Suffolk Learning Disability Strategy 2015-20 Bring people together Provide opportunities for people to talk directly to the Learning Disability Partnership Board Provide opportunities for people to share good news…

Working together and taking action through lockdown

For Advocacy Week 2020, Ace Anglia tell their story about how they adjusted and carried on working together and taking action during lockdown. As a self-advocacy organisation Ace Anglia’s priority has always been to support people with a learning disability and/or autism to have a voice and a platform to be heard. This video highlights how Ace Anglia adapted quickly during the COVID-19 pandemic to transfer self-advocacy groups online and co-produce new online opportunities with health professionals. These activities supported people to stay…

Suffolk People First Online

The next Suffolk People First Online is on Friday 25th September 2020. The theme for this meeting will be Health. The quarterly held events bring together the People First Groups from across Suffolk, family carers, self-advocates and health & social care professionals. The events aim to: Work in co-production with delegates on implementing the Suffolk Learning Disability Strategy 2015-20 Bring people together Provide opportunities for people to talk directly to the Learning Disability Partnership Board Provide opportunities for people to…

In conversation with Karl Butler: experiences of lockdown

The impact of self-advocacy organisations on people’s lives

We are excited to share with you an easy-read summary published by John Wiley & Sons about how self-advocacy organisations impact people’s lives. Please read this document, which shows that self-advocacy organisations help people with a learning disability to live good lives. This is a good resource that we can use to advocate for more support from governments for self-advocacy organisations.  You can find the easy-read summary here: https://disabilityandmeonline.com/?p=330 You can find the full article here: https://onlinelibrary.wiley.com/doi/10.1111/jar.12752

Suffolk People First dates 2020

Suffolk People First is a county-wide self-advocacy event hosted by Suffolk based advocacy organisation, Ace Anglia. The quarterly held events bring together self-advocates, family carers, support workers and health & social care professionals from across Suffolk. We have guest speakers from local, regional and national organisations. The events aim to: Work in co-production with delegates on implementing the Suffolk Learning Disability Strategy 2015-20 Bring people together Provide opportunities for people to talk directly to the Learning Disability Partnership Board Provide opportunities…

Suffolk People First

Last week, Ace Anglia hosted their quarterly meeting, Suffolk People First. We had presentations from: Norfolk & Suffolk NHS Foundation Trust Evie Edwards (2016 Paralympian) NHS England The Learning Disability Partnership People sharing their stories in the ‘good news’ section Norfolk & Suffolk NHS Foundation Trust. Jacquie Knott came to talk about the Intensive Support Team. The team works with people: Who are 14 years old or more Have Learning Disabilities Are mentally unwell Are behaving in ways that make…